Hello to you! If you are feeling like I have been pretty quiet these last couple of weeks on the blog, you are right. I’ve been insanely busy and have had to shift my attention, only temporarily, until I got some things in order. I had mentioned a couple of months ago that we were buying a home for our mom in my neighborhood. We want her closer so we can help take care of her as she continues to progress and the FTD gets worse.
If you are new to TSP, FTD is a rare form of dementia that affects the frontal lobe portion of the brain. Anything having to do with decision making, behavior, simple things like taking a shower or fixing your hair become tasks one with this disease can no longer do for themselves. Sadly, our mom barely speaks at all anymore, but Lauren discovered that she can still read so if we need a dose of her, we crack open a book and listen as she reads to us aloud. That little activity is our way of evolving with her as she does but also still trying to encourage her to use her words in other ways. But I digress.
I have now officially closed on the house and it is all hers. These last three or four weeks I have been busy meeting with contractors and subcontractors working to gather information and begin the renovation of what will soon be her cozy little dream house. We had a slight delay where I had to hire an architect for something I felt was unnecessary however rules are rules and I’m not looking to piss anyone off. We are calling her new house “The Christmas Miracle”. A miracle for a couple of different reasons.
It is my mission to get our mom in her new home by the time Santa loads his sleigh. It is a stretch, but that is our target date and I am not letting up. No siree Bob. This home is also a bit of a morale booster for my family. We always knew we had to downsize, simplifying her living situation and moving her closer to us was imminent and the best thing for her. It has officially become a reality! It is finally happening! It also seems to be apparent that our mom understands and is actually at peace with all of this. Seeing her get excited or have emotional responses are things we will rarely/never see again, however, her behavior at the present moment is so very calm and peaceful. That is all we can hope for. This move? It is a good thing. A really good thing.
Ultimately, if this house gives her peace knowing she is near her family, and let me be honest, near me (because I basically run the frigging show), then in the name of everything that is holy, let’s gut this bitch and give her what she wants and needs. For me, her house is a labor of love and I know when she steps foot into it, after it is all done, the energy and love she will feel will only contribute to the sense of peace and calm she already feels on the regular. It is very important this home feels like her home. A hygge home. I often find myself saying, “Would she like this?” Or, “Is this something she would have done herself?” So, in the spirit of keeping true to our mom and the very essence of who she is, there is lots of effort being put into every detail of this house. She took pride in her home and kept TJ Maxx Homegoods in business back in the day (not even joking). They actually saw a decline in sales after her diagnosis. Too soon? But seriously, my mom loved earth tones, which pissed Nicole off. She was drawn towards natural textures and fibers. She had a bit of an eclectic style and an affinity for mirrors, baskets, and pillows. She was hygge and she didn’t even know it. With the help of Nicole and my secret weapon Adrianna, whom you are going to hear all about as this project gets underway, we are going to make this little space every bit as cozy and warm as she would have, had she done it herself.