OUR FRONTOTEMPORAL DEMENTIA (FTD) JOURNEY

We launched The Sister Project in the fall of 2014. The launch happened to take place right around the time that our mom was diagnosed with Frontotemporal Dementia (“FTD”). Obviously knowing that we wouldn’t categorize dementia under “Cool Ass Shit,” (our blog wasn’t originally intended to be a platform where we would share her story), since we have been on this journey, it has become a recurring topic. Because of our experience, but also because of what we have shared about FTD, we have been made aware of just how many people are affected by progressive brain diseases and we feel a sense of responsibility to continue to share our story.

Dementia needs a voice; there needs to be more conversation about it. Ultimately, at the least, we hope to encourage a greater awareness and compassion for our fellow humans. The next time you are in a grocery store, driving, or anywhere, and you come upon someone who appears to be “off” – confused or just plain crazy – please remember that all diseases are not visible. You never know what another person is going through and, in an effort to show your support for invisible diseases like dementia, we ask that you choose compassion.